The most beautiful mother is waiting for 28 years of a serious ill daughter
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Zhang Juan records baby's daily physical condition on the calendar, four treasures and Zhang Juan's photo [i Mg]http://sd.dzwww.com/sdnews/201403/W020140310273768546765.jpg border="0"> Zhang Juan helped the completely incapable daughter to turn over, "the only mother is good in the world, and the mother's child is like a treasure..." Often heard this song, Zhang Juan's heart can not tell the taste. Although she is 28 years old, she has never heard her call herself "mommy". 27 years ago, the four year old daughter, who was just over one year old, was found to have a rare disease in the world. The longest lived in the world was only 14 years old. Faced with this sad news, Zhang Juan did not hesitate, and from then on, he clenched his teeth and looked after the children. "Although the baby can't speak or feel conscious, when I hold her in my arms, she smiles at me, I feel that my life is meaningful and dynamic." Zhang Juan said. Article / graph journalist Gao Qian Intern Yang Youju news link Rett syndrome is a disease that seriously affects the development of children's psychomotor development, with a incidence of 1/10000-1/15000. The clinical features were onset of girls, progressive mental decline, autism, loss of hands, stereotyped movements and ataxia. Its etiology and genetic methods are not yet clear.
happy family plunge disaster in 1986, in the family's expectation, Zhang Juan gave birth to a baby girl. The mother-in-law said that she was the fourth generation of the baby in the family, and called her "four treasures". At that time, the four treasures were healthy and healthy, with a pair of big eyes, dark and bright, especially pleasing. The arrival of this lovely little life brought more happiness to the whole family. However, there are unexpected events in the sky. All the happiness is ended in the year when the four treasures were one year old.
according to Zhang Juan, the four treasures that just learned to catch things suddenly became irascible, often biting their hands, losing their temper, and always having a fever and even twitching. Zhang Juan and her husband went around the hospital with their babies and ran around the big hospitals in Ji'nan, Beijing and Shanghai. Finally, an expert told Zhang Juan: "the child's disease is called 'Rett syndrome', which is rare in the world. The most domestic cases live to 7 years, and the international cases are only 14 years old." This message undoubtedly condemned four treasures to death.
faced with this sad news, Zhang Juan did not think, "this is my daughter. No matter how big I live, I have to take good care of her." More than 10000 days and nights do not abandon for her scrubbing, personally chewing the baby feed for the baby; every day holding the baby talking, kissing her, almost never sleep at night and steady sleep, every two hours to the baby to turn over, hear the daughter's movement, get up and see, know is suffocating phlegm, use spoon or A little sucker out of the tube... Zhang Juan repeated the work for 28 years. Zhang Juan sat on the floor with a special layer of tile, Zhang Juan told reporters: "the baby vomit, pull ah, urine ah unsanitary, I simply spread a layer of ceramic tiles." Four treasures also have a younger brother, born in 1990, just graduated from university last year. Zhang Juan said, "in order to take care of the baby more attentively, I handed him to my grandmother for 56 days, and I took care of the baby." The calendar on the head of the bed is on the head of the four treasures, with a calendar on it. Zhang Juan came to the reporter to see, turned to February, the above said: No. 1 did not smoke, 9:50 to eat; No. 5 did not smoke, early 8:17 (eat); 7 red dot special; 19 fever... The calendar is full. It's all about the baby's eating and physical condition. Careful Zhang Juan has kept this habit for many years. Zhang Juan told reporters that the baby would have a fever, convulsions, and sometimes a high fever and even 41 degrees every three or four days, so she recorded the baby every day in detail on the calendar and gradually felt the law, and the baby could be less painful. Now, Zhang Juan can judge the location of the sputum according to the severity of the baby's gasping.