origin: Qilu one point Author: Xu Lin / > 14 years old Lin Lin is a "osteogenesis imperfecta", called by the villagers "Porcelain dolls". The pain of fracture is like a phantom tortured him, from birth to the present. Well, it's not fragile around his love. In the past eight years, with the help of all the people, Lin Lin has successfully sought medical treatment, admission and growth. Lin Lin's world is not only suffering caused by sickness, but also the warmth that this society brings to him.
(Lin Lin and her sister Xiao Hui are playing at their desks.)
home in the mountains
June 16th, volunteers came to Lin Lin's home, West Camp Town Lin Zhi village. Lin Zhi village is located in the deep part of the southern mountain area. Down the provincial road, the village road turned into a winding mountain road.
the mountain road is narrow and steep. Sun Rongjia has been familiar with it many times. He is the project director of the medical aid project of the public welfare foundation's rare disease. He is familiar with the situation of Lin Lin. He drove the car skillfully and cautiously on the mountain road. The scenery in the mountain is beautiful, but he has no mind to appreciate it, because there is a high mountain on the side of the road and the deep ditch on the other side of the reservoir.
after nearly two kilometers, the car turned on a steep slope. The road built on the ridge was not long, but there was no barrier on both sides. It was more dangerous than the mountain road before. I passed the ridge road and finally came to the doorway of Lin Lin's house.
the mountain village was quiet, and the sound of the car stirred up the calm air. Tian Hongsen, Lin Lin's father, heard a voice at the door. He knew that the volunteer who arrived in advance had come and he went out. In front of the slope, Lin Lin's grandmother and sister Xiao Hui also stood at the door to greet the arrival of volunteers. This is the most busy time for the Lin Lin's family.
in 2004, the birth of Lin also brought joy and excitement to the family, but the crisp ringing of a fracture in the hospital after she was born in the hospital broke the joy before it. After diagnosis and treatment, the doctor said Lin Lin was a "porcelain doll".
"porcelain doll", which is commonly known as a rare disease "osteogenesis imperfecta". The clinical features of common osteogenesis include bone loss, bone density, bone strength, bone fragility, fracture, bone deformation, and growth restriction.
after the diagnosis, Lin's family fell into the mud of poverty. In the young growth of the forest, the fracture was like a shadow. It was more common for one or two months to stay in hospital, and twenty thousand or thirty thousand of the medical expenses quickly made the family in Lin's family hopelessness.