Light up the light of life and enter the children struggling with leukemia.
Author: Bai Pengfei Wang Huailian
they are a group of special young children who have to wear masks carefully because of the disease; their hair may become thinner because of chemotherapy. Their parents had been hesitant and helpless, but they did not give up hope of life. In August 20th, the "Ji'nan life small warrior conference" was held in Ji'nan with the theme of "lighting hope, flying dreams, reappearing the light of life". Journalists approached these children, approached their parents, approached the rehabilitative representatives, contacted the doctors at zero distance, and fought together for them to resist the disease. The determination was moved.
life, because of the confidence and the glory of
20 - day morning of the Shandong University Qilu children's hospital four floor meeting room, 30 year old Zhang Jie (the pseudonym) became the focus of the 15 parents of the conference. 20 years ago, he was also a child with leukemia. Now, he has not only grown up healthily, but also married and married. He has a cute baby who is over one year old. Facing the eyes of these parents, Zhang Jie recalls the process of treating her and his parents, "sun" his own growth experience and happiness. He told parents and children, "leukaemia is not an incurable disease. I understand the heart of the parents at the moment and the pain of the children," But it is not the end of life. As long as we have confidence and active treatment, we can enjoy life and benefit the society. Life is bright with confidence. "
overcoming "leukemia phobia" is a top priority
"now the cure rate of children with leukemia is very high, such as acute lymphoblastic leukemia, its cure rate can reach 70% - 80%, and the cure rate of acute non lymphocytic leukemia can reach 30% - 40%. But for parents and doctors, the biggest problem is the attitude of people to leukemia. When parents hear that children are leukemia, it seems that the day is falling down, but what they do not know is that most of the disease can be cured. I think it is necessary for the public to understand this disease and eliminate the mystery and despair. " Zhang Leling, the director of the Department of Hematology, Qilu children's Hospital of Qilu, Shandong University again and again stressed to reporters that this disease can be cured, "the earlier the disease is found, the more likely it is to cure it, but now, because of the cognitive and economic reasons for leukemia, many parents are dragging, dragging and missing the best. It's very painful for the time of treatment. " Wang Xing (a pseudonym), a leukemia patient in 70s, was the hope of parents. "He was leukemia in 1970. Now, he's 50 years old, 40 years in the past, should he be healed?" Zhang Leling said: "think of the medical and living conditions at that time, Wang Xingshang can cure," Not to say now. "
related data show that only in Shandong, there are more than 3000 people with leukemia. There are about 4000000 leukemia patients in China, and more than 40 thousand people have been added each year. Among them, nearly half of them are children. All the major hospitals in the province will cooperate through technical exchanges, up and down referral and so on to form a benign evidence-based treatment of leukemia. The cure rate of leukemia in the province is expected to increase to more than 80%.
requires more social support for
in the interview process, the reporter touches another sensitive question again and again: the cost.
mama of pearl beads from children with leukemia said she asked the doctor after she found out Pearl's illness: "how much does this leukemia cost?" the doctor told her, "if the child is well functioning and the treatment goes well, it will take about tens of thousands of yuan. Otherwise, you need more, about 20 million! "
1.2 million is a big number for ordinary families. Zhu Zhu's mother told reporters that during this period, there are also many good hearted people to give them care and help. "There are two elder sisters I will never forget! I don't even know their names, except that they are all Jinan people. And one of the old granny is my home. I just want to say thank you to them. Now, my daughter has successfully completed the most critical treatment sessions. But my family's savings have also been spent! But our family will not give up the treatment of my daughter, as long as there is a glimmer of hope, and the treatment of the daughter to the end! "
the mother and family of Pearl's determination and courage are admirable, but this is also a very helpless thing for the medical students:" the treatment of leukemia. " The cost of treatment is great, it is difficult for the general family to bear, many patients, because the parents' wrong understanding of this kind of disease and the family economic conditions have delayed the best time for the children to treat them. In fact, the smaller the child, the better the treatment, but it is hard to achieve this in reality. As a doctor, we will do our best, and the hospital will do our best, for example, our hospital is working with the life small warrior of the Hongkong children's cancer center to serve children with hematologic oncology to encourage more leukemia children to overcome the disease. However, the treatment of this disease requires more support from the community, and more support from charitable people and institutions. Ma Yanhui, President of Qilu children's Hospital, Shandong University, said. After the
morning exchange, the children and parents of the Ji'nan life small warriors and their parents went to Daming Lake with doctors and volunteers, and the smiling faces of the children became the happiest of the participants.
Mother Pearl said, "I believe, with the support of so many good people, the rapid development of modern medicine, the daughter's illness will be good! I also often say to my daughter, 'believe my mother, you will be better! Don't you have a sentence? No rain can see a rainbow without wind and rain. . I believe that the rainbow that belongs to her daughter will soon rise to the sky. It will also be the most beautiful rainbow in the world.