Re: "glass" boy 's "pain dream"
the summer
in the air-conditioned room, because there is no sweat gland. In the summer, the children will have a high fever. The couple borrowed more than 1000 yuan to buy an air conditioner and put it in the bedroom. From then on, every summer of the child would be spent in the air-conditioned room, worried that the child would sneak out, and Zhang Xiaoxia and his family were watching in the room.
, sometimes the children always go out to play. Zhang Xiaoxia occasionally takes the child out and breathed, but he only dared to go to the shade, and put a wet towel on the child's head.
before finding out the illness, the child has no name, after finding out the disease, the family is named Shi Kang, one is to hope that the child can recover as soon as possible, and then, hope the child's life is healthy and healthy. Zhang Xiaoxia said that the child dropped out of school only after six months of illness. In kindergarten, every day she will accompany the children to stay in the kindergarten, to be afraid of an careless child will bump, then the child in the first grade, she and the child granny turns to look after. Even so, children can't go to school like other children. "Winter is OK, there is no air conditioning in the classroom in summer, and the children are rolling on the ground in the heat." Zhang Xiaoxia said, "we look at the pain and let the child stay at home."
fear of daylight days
Zhang Xiaoxia said that when she was a child, she was most afraid of daybreak. "
" the child is a little ignorant. It's easy to bump and bump. At that time, I did not dare to leave the sight for a moment. I felt that my eyes were stare in the daytime. " In spite of this, Zhang Xiaoxia said, the child has gone through eight fractures, "three times in the arm, four legs, and one more ankle," he said.
Zhang Xiaoxia told reporters that the effect of a child's fracture treatment is not good, because he does not feel pain, when it is found when adults often have had the best period of treatment, "we have never been free to give children an operation, the more complicated the disease." Since his son, Zhang Xiaoxia did not go out to work, only by her husband's income to maintain the family and children's treatment fee, except Ji'nan they also can not take extra money to take the children to the Beijing hospital for treatment. "Relatives and friends can borrow all of them, I am sorry to speak again."
she regrets that the day was too hard, and the child's father was working out to make money. She kept her children at home. She was in a great mood all day. Whenever it came to the night, it would be a temporary relief. "That time was too painful for me to know how it came through." Zhang Xiaoxia said.
the children are growing up now, although life can not be self-care, but at least not casual knock on, Zhang Xiaoxia rented a facade room in the town to do the curtain business, the child's father followed others to do the business of doors and windows, although the days are still a little better than before. Zhang Xiaoxia and his wife are raising money recently to take their children to a big hospital in Beijing.
"pain" dream
Shi Kang has no great dream. The fifteen year old boy only wants the freedom of the age and the perception of the pain.
on the morning of May 10th, he first saw Shi Kang in the courtyard of Shanxian County central hospital. He sat in a wheelchair. The boy in front of him looks much thinner than his age. His face is yellow and his right hand is in a wheelchair. His hands looked rough, as if they were molting, and his right index finger was missing. Pushed by his father, his father told reporters that the child suffered from brittle bone disease, also known as glassy disease, as brittle as glass. Children usually walk a few steps, now because the hip bone can not walk, "normal people squatting for a while, but children squatting may be a problem."
Zhang Xiaoxia said, Zhang Xiaoxia said that the child's index finger was rotted when it was at the age of seven or eight, the summer was too hot, the child liked to gnawing his fingers, and then it was infected and never had a new one. Because no sweat, the child's skin was very dry, especially in the summer.
the boy doesn't talk and asks if he can feel pain. He just shook his head. In Zhang Xiaoxia's impression, the son has never cried in front of the couple, but before hearing from grandma, the child cried in front of grandma. "Say no, the cure is not good." She says, in addition to watching TV and playing basketball, the children can only sit in bed and play against the wall. "Sometimes, I can also talk to me about what the pain is, and every time I hear it, it's not a good taste."
please help this child
child father stone Yong country
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