source: Shun Net - Ji'nan times
October 2017, Dong Junlu hung himself in the Dezhou mausoleum District Dong Yang PI village five big tile houses to the real estate intermediary network, marked 168 thousand yuan. But half a year later, there are still few people. "Any way has been tried, or not enough." In April 11th, Dong Jun Lu Wo was in the chair of the hospital in Qianfo Hill, and he buried his hand in the holes in his trousers and whispered.
Dong Junlu fondly stroked little HONO's head reporter Wang Hanbing for
his son, little ro Hui, diagnosed a rare juvenile granulocytic leukemia (JMML) a year ago for a year. In time, the cost is over 300 thousand. In August last year, Xiao Rong Hui was successful with Dong Junlu's bone marrow matching, but he was dragged to the present because he could not afford to pay a high transplant fee. According to Wang Hongmei, the chief physician of small Rong Hui, the only way to cure the disease is only allogeneic hematopoietic stem cell transplantation. Otherwise, the life of Xiao Rong Hui may be terminated at any time.
"Mom, when can I go back to the kindergarten?"
in April 11th, little HONO splits on the transparent curtain of the laminar bed (mobile laminar disinfection cover) and stared at the people coming and coming in the corridor. His 6 year old man is much smaller than his peers, and the two legs are only as thin as adult arms. The stomach is more than the size of the ordinary man, and the people who pass the ward can't help slowing down their feet and look at both eyes. It is the liver and spleen caused by the disease. Long term chemotherapy has left his hair low, which makes him look more like a three or four year old child.
Xiao Rong Hui has lived here for almost a year, and the daily activity area is only confined to the hospital bed. More often, he was lying in bed staring at the ceiling quietly. When the sun is shining, Dong Jun road will gently lift him out of the laminar bed and let him sit in the sun under the window.
at noon on the 11 day, Dong Jun road went to the nursing station to borrow a shaving push. Though little Rong Hui's hair had been left, Dong Junlu "wanted him to be clean".
looking at Xiao Rong Hui, who is sitting quietly on the bench and shaving his head, don't overlook Dong Jun Lu. He rubbed his eyes hard with his sleeve. Xiao Rong Hui, who shaved his head and was put back to the laminar bed, quietly played with the little flower basket he made with his mother in the ward school. That was his only toy.
"Mom, when can I go back to the kindergarten?" this is the sentence that Xiao Rong Hui asked her mother most. Whenever he asked such questions, Xiao Rong Hui's mother Wang Fang always kept his head aside and avoided the eyes of Xiao Rong Hui.
"as long as I can save his life, I can do"
time to fall back to March 2017. Dong Junlu, who worked outside, received a phone call from his mother. "How is it getting bigger and bigger, take him to the big hospital." Xiao Rong Hui is weak and ill from childhood. Injections and medication are more common. Dong Junlu recalls. Later, Dong Junlu took Xiao Rong Hui to Dezhou People's Hospital and was diagnosed with hemophagocytosis syndrome, but the doctor advised them to go to the large hospital to do the examination again.
March 23, 2017, Dong Jun Lu remember this day very clearly. On that day, he knelt at the door of the hematology Hospital of the Chinese Academy of Medical Sciences in Tianjin, and asked the doctor to save Xiao Rong Hui's life. "There was no bed at that time, and the hospital refused to accept it." Here, Xiao Rong Hui was diagnosed with myelodysplastic syndrome. After the diagnosis of
, Dong Jun road began to raise money to cure Xiao Rong Hui. "At the most, it spent more than 50 thousand of the day." Because of the inability to bear high medical costs, in July, Dong Jun Road, with small Rong Hui, came to Qianfo Hill hospital for treatment, but at this time, Xiao Rong Hui's condition has developed into a juvenile type of granulocytic leukemia (JMML).
in July 29, 2017, Dong Jun road first launched a call on the Internet "to save my stomach as a ball of leukemia son," Dong Junlu wrote on the fundraiser platform. Up to now, Dong Junlu has raised over 10 yuan in various fundraising platforms, but this is still a drop in the bucket for the treatment of Xiao Rong Hui.
to open the WeChat of Dong Jun Road, you can see that his WeChat front page is chatted by a variety of groups, he explained: "this is the other people teach me, more group, more people donate more." And Dong Jun Lu's WeChat head is also a picture of him holding his identity card. On the day of the interview, Dong Jun Lu showed reporters his latest fund-raising amount of 703 yuan. Up to 3 p.m. on April 15th, Dong Junlu had raised only 2368 yuan in the fundraising platform, and his target amount was 300 thousand yuan.
with the help of fundraising platform, Dong Jun Lu is one of the ways to raise money. After borrowing friends and family, Dong Jun posted messages on the roadside for help, overdrawing his wife's credit card. In the hardest time, Dong Jun Lu even took Xiao Rong Hui to go to the streets to entertainer. On the eve of the Mid Autumn Festival in 2017, Dong Jun road sold mooncakes on the streets of Dezhou's old home. He even made a piece of "art rescuer". He hoped to make money by massaging the passer-by by his old massage. "I can do it as long as I can save his life." Dong Junlu said, but none of these methods can solve the high cost of transplanting.
according to Dong Jun Lu's estimate, he has borrowed about 100000 of foreign debt so far, raising about 100000 and overdrawing credit card by about 100000. More than Dong Jun Lu, his father suffering from diabetes treated Xiao Rong Hui for saving money, and no longer took medicine. Dong Junlu, a more than 60 year old mother, also started working in factories around the village, earning only 60 yuan a day.
"even if there is a one percent hope, one hundred percent efforts must be made"
according to Wang Hongmei, the chief physician of young Rong Hui, young granulocytic leukemia (JMML) is not sensitive to chemotherapy. Allogeneic hematopoietic stem cell transplantation is the only way to cure the disease. It can make about 50% of the children more than 3 years of disease free survival, unallogeneic hematopoietic stem cell transplantation. The survival time of children is usually 10 to 12 months, but the recurrence rate after transplantation is still high. Most of the recurrences occur within 4 to 6 months after transplantation. And juvenile granulocytic leukemia (JMML) is a highly heterogeneous disease, and 15% of children have a risk of transforming into acute myeloid leukemia, which usually occurs within 2 years of the diagnosis. But without transplantation, more than 80% of the children will die within 3 years. However, the probability of recurrence after transplantation is still 30%, which is also the main cause of death.
unfortunately, Xiao Rong Hui has been transformed into acute myeloid leukemia. So it is imminent to transplant. After the recurrence of the transplant, Dong Jun road is not unknown, but in his view, "even if there is one percent of hope, also have to pay one hundred percent efforts."
at the end of the interview, Dong Jun hesitated for a long time, asking the reporter, "can you ask if you want to buy our house in the newspaper? It's close to the highway, and it doesn't live. It's very convenient." Nowadays, Dong Jun Lu hopes to put all his hope in the five large houses.