Desperate parents: who will save my son
Kay Kay 8 years old Kay When Kay (the pseudonym) stood in front of the reporter, few of the children of this age had the kind of inner pleasure: no smile, even a very careful talk. He had been tortured for 4 years by a rare disease, which not only allowed him to go to the toilet for more than ten minutes, but also encroached on his eyesight. 3 years ago, he was diagnosed with optic neuroma. Only 100 thousand of these 100 thousand patients had to lose sight. Kaikai's father is not willing to be willing to go to Ji'nan and Beijing Shanghai to see a doctor. All the conclusions are only one: to save the life, all the tumors must be removed so that the child has no eyesight; it can not be completely removed, but the tumor will continue to grow, and the child will still face the result of losing sight. Reporter Yang Fang
how does the child go to the toilet more than ten minutes? Originally, he had brain tumor
Kai Kai from Zichuan, Shandong, born in July 2007. When I was 4 years old, my parents found my son very strange: how do I go to the toilet in more than ten minutes? There is no urine at all. Take the child to the local hospital to see it, and did not find out why. Doctor analysis may be psychological or neurogenic frequency.
in the past year, kkai was 5 years old. At this time, the kindergarten organization found that his vision was very bad, and his left eye vision was only 0.3. Kaikai's parents took him to the local hospital. The doctor said it was "amblyopia," so he treated it according to amblyopia. Kaikai also wore small glasses. After a month's treatment, Kai Kai took a bus. A backpack passenger accidentally touched his left eye. "The child said he was sore, and I took him to the hospital. This time I did eye CT. The doctor said there was something in it." Kaikai's father told reporters that on the second day, he gave his child a brain MRI, which confirmed that his son had a tumor in his brain.
to save life, you have to remove the tumor, the child will lose sight
kkai's father said that they were in panic at the time, and rushed to the cancer hospital in Shandong province and the provincial hospital to confirm the diagnosis. "At that time, the two hospitals only knew that they had tumors, but did not know exactly what they were, and suggested that they should visit Beijing."
in Kai ho hospital, Kai Kai was diagnosed as optic neuroma. According to introducing, this is a very rare disease, the incidence rate is only 1/10 million. The tumor is long in the optic nerve. If you want to save life, it must be completely removed. It is conceivable that a part of the optic nerve must be removed, and the child's world will fall into a dark. The doctor also told kkai's father, even if the operation was done, the effect was not good, and the residual tumor cells still needed chemotherapy, and chemotherapy was not good for the child's brain.
kkai's father does not want his son to lose sight. Doctors said that surgery can also take part of the tumor tissue to see if the development of domestic medical care, what better way.
kkai took his children to Shanghai Xinhua Hospital and got the same answer as Beijing. In 2013, Kai Kai underwent partial tumor resection in Beijing.
the tumor was found to grow up again in July
kkai mother, mother of kkai's mother, told reporters that her son's frequency of frequency of urination remained unchanged after the operation. In July of this year, they took kkai back to Beijing again. "The doctor asked us to continue the operation." Mr. and Mrs. Wang Wen still couldn't accept the result. Two years after his son's operation, her husband has been inquiring about the treatment of the disease on the Internet, knowing that the treatment in foreign countries is good and the child does not have to be blind; he also visited the family of patients who had been treated abroad, and decided to take the children to foreign treatment. "However, the cost of treatment abroad is about 15-25 dollars, and our couple's income is only 4000 yuan a month, and in recent years it has spent more than ten thousand..." He hoped that people in the community could help them.
Wang Wen told reporters that Kai Kai is a very strong child. Since his illness, injections and medicine have become commonplace and never cried. "Blood vessels are difficult to find, and often need to be tied two or three times. He never cries." He knew that he had a very serious disease. When he was unable to move the MRI, he did not move for 20 minutes. I do it more than ten times, and tell me every time: "Mom, you must hold on to my leg energetically, but don't let me move." With these words, Wang Wen shed tears. "If I must get sick, I hate to replace him!"
can't watch TV can't eat sweet food such as children's hobbies, he had
because of poor eyesight, Wang Wen didn't let his son watch TV. "Sometimes he will ask us to let him watch for five minutes or ten minutes, but as soon as we talk about his illness, he will hang his head and do something else."
because of illness, kkai can't eat sweet, eat spicy, eat meat, eat shrimp, and so on. He can't eat a lot of food that children like to eat. Wang Wen said his son did it. Once, when relatives came home, he brought him a box of chocolates. He was so greedy that he said to Wang Wen, "Mom, I lick it. I will not swallow it." Wang Wen did not agree, and Kah did not insist. "He is so persistent and patient, unlike children of this age." Wang Wen spoke with his face and wiped the tears of his eyes.
now, Kah's left eye has almost no eyesight, the right eye is only 0.8, and the tumor continues to increase, no surgery, and can only face blindness and loss of life.
who can help the family and let the lovely kkai continue? Love donation can be sent directly to Wang Wen, ICBC card number: 621226160300636779.