Rare disease friends gathered in Ji'nan "ice bucket challenge" announced the release of good money

In August 8th, more than 300 rare diseases from all over the country gathered in Shandong Ji'nan, Shandong, sharing the experience of medical rehabilitation, policy and law, education and employment, and appealed to the community for more rare diseases. Attention and support.
the Fourth National Conference on porcelain dolls is sponsored by the public welfare organization, the rare child care center for porcelain dolls. Qi Xuesen, director of the China social welfare foundation, said in this time that the two years of the conference brought together all the people from different parts of the country to share the experience of life and life, and to face the sunshine and difficulties of life together, it was a good platform. The Department of social welfare and philanthropy of the Ministry of Civil Affairs has expressed support and encouragement in the letters to the general assembly of rare diseases, including patients with osteogenesis imperfecta (so-called "porcelain dolls"). At the opening ceremony of the conference, the centre for rare disease care and care announced at the opening ceremony of the conference of the head of Alibaba cloud work platform is also announcing that it will provide 1000 cloud work posts to rare disease patients each year. Singapore Airlines has announced it as a strategic partner for the porcelain doll rare disease care center, and will continue to support the public welfare project with the tourism industry partners in the next three years.