Shandong commercial newspaper
autism (also called autism) patients are poetically called "star children", but this group faces the cruelty reality: they The ability of self-reliance and employment is low, and life-long maintenance is required. An autistic person often needs two generations to manage properly.
in remembering the future of the 16 year old autistic daughter, Lyne's mother sobbed
in Ji'nan. A unique circle: most of them are middle-aged people over 40 years old, but they always carry the burden of "guardians" on their shoulders. They are the parents of older autistic patients. On the national disabled day, let's get closer to this group of people who are surrounded by warmth.
in Ji'nan, there is such a unique circle: most of them are middle-aged people over the age of 40. Some people have even more than half a year, gradually entering the aging group, but on their shoulders, they always carry the "Guardian" burden. In the eyes of most of them, "white haired men send black haired men" is not a great grief, but a relief.
they are parents of older autistic people.
whether we should have a second child, how to let children go to school and get jobs, all these problems have plagued them. But now, they are faced with a common problem that they dare not think but have to think. What do you do when I am old?
when the national aid day is approaching, we walk into this circle of mutual warmth and warmth. This edition / reporter Li Jie Intern Xuan Xiaoxia chart / reporter Liu Chang
once thought to grow up
in Li Yu's 40 years of life, there have been two nearly successful suicides - the first time when son Dongdong was 5 years old, after all the ways to cure his son's autism without fruit One night, Li Yu suddenly held up his son to the balcony and wanted to jump down from the 8 floor. At the moment of success, her husband, Wang Chen put her on the balcony, the husband and her husband wept, and Dongdong sat on the ground vacant.
the second nearly successful suicide was at the age of 8 in east east, when Li Yu cooked in the kitchen, the stereotyped behavior of autism made east east cry, and began to bite his hands - blood gushing from East and East, smeared on his face and clothes.
Li Yu did not stop it at that moment. She just looked at her son peacefully through the tears. Then her right hand slowly unscrewed the gas valve, until the East was crying because the smell of gas suddenly stopped, and a blank Li Yucai in the brain woke up in a flash.
Li Yu had never heard of "autism" before he was 3 years old, so she once "naively thought" after she got the hospital's confirmation report, "just take the children to see more people and communicate more, they can be cured." In Li Yu's knowledge and cognition system, the so-called autism and loneliness are psychological behaviors rather than developmental disorders.
not just Li Yu, almost all the parents of older autistic parents have had a similar innocence. In an age of dissymmetry, even professionals, even professionals, have limited access to autism - a 22 year old autistic, Yi Ming's grandmother, who was a hospital paediatrician, for example. The old man who has entered the age of old is still not convinced that his grandson is suffering from autism.
the ruthless reality is that 75% of the autistic patients are accompanied by obvious mental retardation and mental retardation, some even a lifetime of silence, so it is also known as "cancer in the mental disease", and before the public know the disease, the children tend to be crowed as "fools", "mentally retarded" and so on. Discriminatory labels.
so, many of the parents, after learning the truth, had the idea of suicide, but at the last moment, they looked at the innocent eyes of the children. They forced themselves to stand up and live well.
an entangled second child
15 year old Lyne sat on the floor of the living room, and the 3 year old brother ran away occasionally, pushing her, or beating her, and laughing and running away.
Lyne laughs and never strikes back, although she will have some violent behavior during the onset of autism, but for her brother, she can always keep a calm and tolerant smile.
3 years ago, mother Zhao Guo and her husband finally made up their minds to have a second child.
the etiology of autism has not been conclusive yet, but it is clear that the role of genetic factors for autism has become obvious, so the decision of Zhao and her husband is obviously full of "gambling". "We talked about it. When we leave, we can let the younger brother go to the hospital or the institution to have a look at his sister when he is free." Speaking of this, Zhao Guo suddenly collapsed and burst into tears. More than a year ago, her husband died of illness, which made Zhao Guo face great pressure.
is an extremely entangled topic for parents of older autistic people. If the second child is still autistic, it will add a huge pressure, and if the second child is healthy, the future is still worrying - that means that the younger brother or sister will take care of himself after the parents are old. Sister and brother.
before and after 2000, Li Yuhe and Wang Chen, who had been suffering from severe autism, had struggled with a second child, but at that time, Li Yuhe and Wang Chen did not know autism. In 2005, the God of luck had taken care of Li Yu - she was pregnant - just this lucky, more like a torment to two couples: touching her little belly every night, Li Yu was always worried about it, and she didn't know if the baby in her stomach would be in the east or East.
this inexplicable worry made Li Yu unable to sleep at night, and then became a huge psychological pressure, which made her body feel more and more uncomfortable. After two discussions between husband and wife, Li Yujin finally reluctantly chose to give up, in the moment of operation room in Wang Chenku. He didn't have the courage to bet on the game. "Sometimes we also think that even if the children are born healthy in the future, it is inexplicable to bear the responsibility of taking care of the East, which is unfair to the old two." Although it has been ten years, Wang Chen is still a little melancholy.
"I leave, who will take care of her?" If
is a problem for parents of older autistic people, most people "dare not think" on this issue.
but when the cruelty of time goes on, it puts a question that most parents "dare not think but have to think" to them: "what do you do when I am old?" "I forced myself not to think about it, and I thought that I had to take care of my body now and try to spend more time with my children. I also believe that the state will always help us." It has reached the age of knowing the fate of the elderly, despite the high blood pressure and other chronic diseases, but still positive and optimistic. "What can you do?" I'm ready. I'll send the children away before I leave. The sleeping pills are all ready. " Liu's daughter, 26, was a severe autistic, and Liu lowered his head. He said, "I'm just such a child. I'm gone. Who will take care of her?" It is unrealistic to expect relatives and friends. "
maybe more negative than big Liu, maybe a lot of parents of autistic people at the age of 31. According to normal people, many parents are going to enter the aging population, they should be supported, and in fact, in the circle of older autistic parents, they can't be used as old as they are. Another label on the body is the guardian of autistic patients. "Do they have guardianship when they lose their ability to work?" Wang Chen said so.
parents of almost all older autistic people see "the white hairs to the black hair" as a kind of happiness, because at least, when they leave, they can be unimpeded.
"perhaps this is our most helpless happiness?" Chen Ying, an optimistic parent, suddenly dropped his head and fell into silence.
this has also made the head of the Ji'nan based intellectual disability service center to consider exploring the new model of autistic patients: "since our center was founded in 2006, more and more people are receiving, for parents, the children's future is the greatest heart."
a few days ago, there was a public interest in the society, which made many parents think, "it is a good choice to make up for a piece of land, build an institution and let the caring people of the society help us to take care of the children in the future." "We were exploring the treatment of children and calling on society to pay attention to autism, and now we should explore how to find a home for these older autistic people." At the end of the talk, Li Yu showed a strong smile.
let's go down to
almost all the parents of the older autistic people who have had a hard way to seek medical advice. They are constantly seeking medicine, constantly reflecting on the "up", and causing the country's attention to autistic people.
now, the state has begun policy support for autistic children.
parents of older autistic people have also begun a new way of self-help: they join parents of autistic children through telephone and QQ groups to introduce their own experience of seeking medical care and psychological counseling for parents who have just been diagnosed with autism. "I just learned that the child is the time of autism, the mood of parents is the most unstable, what they need most is psychological counseling, we are all people, very clear their present mentality." In addition to learning to understand the treatment of autism, Li Yuhe and Wang Chen also conduct psychological counseling for their parents by self-learning psychology.
parents of older autistic people in Kei also often travel or meet under Zhan Yuzhi's organization: "to go out to play or learn, it's just a platform for everyone to comfort each other, and then go down strong." Zhan Yuzhi said so. In order to protect privacy, the rest of the people are alias except for fighting jade.