0 to 6 years old / > You can enjoy 12000 yuan per year for salvage treatment > 6 to 12 years old
enter
admission to ordinary full-time primary school or special training school, may break out emotional problems
dropout
go to rehabilitation center, limited to social open quota, and less training skills
12 Years above
rehabilitation centers rarely receive a lack of reasonable placement models
they are known as stars, living in their own world like stars in the sky. Many of them grow up and get lonely, no subsidy, and no reasonable placement.
the mothers of 5 autistic children took the lead in action. In November 21st, they carried out an application for the establishment of a rehabilitation center for Ji'nan Xiao AI disabled people, which was also the first autistic self rescue organization in Ji'nan, with the one hundred thousand yuan registered capital collected from the West.
reporter
newspaper reporter Zhang Dandan
there are such a group of special children: they are not deaf, but they are not blind to their parents' calls, but they do not see their parents' smiling faces without being dumb, but they do not know how to communicate with others. They carry a worldwide medical problem:.Amp; mdash.amp; mdash.amp; mdash autism.
, so there are such a special family. They say, wait for long lonely road, they dare not go old.
a mother.Amp, who was in a car accident and was afraid of a coma; mdash.amp; mdash.amp; mdash
I was alive, and the child could live with dignity to live
on one evening in the winter of 2012, Zhu Guiying, 44, had a serious accident. With all the trouble, a thought crossed her mind and urged her to wake up quickly: must not die, must live, if so, how can the children survive?
Zhu Guiying's son, Ma Shucai, 11 years old, was diagnosed with soliton when he was two years old. Because of his timely treatment, he had learned to write brush words and learned several simple words after training for a few years.
August 2013, the first time the reporter saw the Zhu Guiying family. At that time, they were at a loss and suffered from the worsening of Ma Shu's problems. Zhu Guiying said that his son entered puberty in 2012. His emotions became very unstable because of the changes in the hormone levels in the body. The skills they had learned were degenerated. They would stomp with feet, yell, and even clenched their hands to beat themselves or their family.
Zhu Guiying took his son to the hospital, concealing the fact that he was suffering from autism, and got some medicine for crying. As a result, the son took the medicine, and the endless crying stopped. The child shouted, "I want to cry too," the child cried, and I wanted to cry. He doesn't understand me, and I don't understand him. There was more than one moment. I wanted to jump off the balcony and jump down with my child. Zhu Guiying said, but I can't do that. If there is a choice, children do not want to do this. It is not his fault. I can not deprive him of his right to survive. I can't die if he is alive.
like most autistic children, horse trees do not have the ability to take care of themselves, and can not be separated for 24 hours a day. Zhu Guiying's task is to bring the children, her husband is responsible for making money to support the family, a person to earn two jobs to earn four thousand yuan, to provide the family expenses. However, with the increasing growth of children, two people feel increasingly powerless. Ma Shucai, 11, is 165 centimeters tall and weighs 170 Jin, which is in sharp contrast to the thin Zhu Guiying. In every power confrontation, children gradually gain the upper hand. In order to find a way to alleviate the symptoms, Zhu Guiying took the children to seek medical treatment in the field. It was one or two months to spend tens of thousands of yuan, making the poor family more difficult. For a family like ours, life is all day after day. I don't know where our future will be, what will happen to our children. I can only do my best to take care of him when I am alive, and let him live with dignity. I dare not think, if I am old, if I die, what can a child do? So, I dare not be old and dare not die. Zhu Guiying said with a bitter smile.
the first batch of patients with autism in Ji'nan,.Amp; mdash.amp; mdash.amp; mdash
father and mother love him, and are willing to be responsible for him,
in the eyes of others, Zhang Ping and her husband are a pair of men and women, two of them, who are in the family, and post in office units after graduation. There is a car and a house, and the income is stable.
however, fate has given them an autistic child,
has changed their original life trajectory.
Zhang Ping, 18, is the first confirmed autistic patient in Ji'nan. He has participated in various training courses. Zhang Ping
the child looks very healthy when he is born and is 3 years old but is slow to speak, and the call to his parents often shows careless appearance. She ran around the big hospital in Ji'nan with her child. What happened to
children? For a long time, Mr. and Mrs. Zhang Ping were all confused, until one day he saw a news in the newspaper and knew a noun called autism.
Zhang Ping says, what they often see is that a family has an autistic patient, and all the people in the family seem to be lonely and cut off themselves from the outside world. She and her husband used to do the same. They are afraid that their children will behave differently. They dare not take him to public places, but they stay together at home. "There is no reason to speak with autistic children. When he starts to quarrel, he will never understand. At that time, I was very afraid to look at others' eyes, mixed with pity and dislike, and saw that people's hearts were very uncomfortable. She said that over time, the family became ill.
Zhang Ping said that in the years she had just been diagnosed, she could be strong and strong before people, but when she got home, she could not help crying. She took her children to the field for medical treatment. She found a newly started autism professional rehabilitation institution in Beijing and met a French volunteer named Michel. Michel, a psychologist, came to China to help families with autism after finding out cancer. He encouraged Zhang Ping and her husband to understand autism, understand their children, understand themselves, and guide them to come out slowly.
"Michel tells us that our child is suffering from autism, which is not a child's fault, but not anyone's fault. Such children are doomed to be born. There is always someone to bear this responsibility. If the parents are not responsible, the child is not diagnosed and treated in time, and his condition is not effectively controlled or even harmful to society. We should be grateful that the child was born in a family like ours, and that his father and mother loved him and were willing to be responsible for him. Zhang Ping's husband said.
a group of parents who choose not to have a second child - -
"one is enough, the regeneration is unfair to the child"
there are no two identical leaves in the world, and different autistic patients have different loneliness. Chen Mulin, 10 years old, likes to talk to himself. He will make a wall or shout when he is excited. He must take a lift at noon every day and learn to sing along with the melody of music. Liu Fuyu, 7 years old, likes to eat and play games. He can simply make a statement. When he fails to satisfy his requirements, he will give vent to crying. Fang Yihao, 12, has hyperactive symptoms, introverted and ambiguous words, and has inherited his father's talent in painting. Wang Shuai, 13, vented his emotions with aggressive behavior, but he also did some housework. The diversity of clinical manifestations of
fully demonstrates the complexity of pathology. The results show that the pathology of autism is similar to epilepsy, the structure of the brain is damaged, the abnormal discharge of the neuron leads to cognitive and emotional abnormalities, and the injury is different in different positions and degrees, and the performance is different. But this kind of damage is very slight. It is difficult to distinguish accurately from the present brain imaging technology. Therefore, the embryo can not be identified in the pre pregnancy examination, the way to identify the disease is only waiting, and the child will be 3 years old to observe the corresponding characteristics. The parents of autistic children reproduce the second child, and the incidence of autism is higher than that of the normal population.
there are many people who choose not to have a second child among autistic parents. They said it would be unfair for children to have another baby. Worrying about producing defective children is only one consideration. They are more worried that, for an ordinary family, it is a heavy burden for autistic children to take care of life, both physically and emotionally. The two parents would not care if they had another child.
for families with autistic children, emotions can only be unidirectional. They give unconditional love to