the Ji'nan Daily reporter Shao Minghong correspondent Liu Xueqian
Li Yanjun, a family of four in the Changqing women's Federation office.
(Liu Xueqian Shao Minghong)
Li Yanjun, a villager in the village of Dong pan in Changqing District, Ji'nan City, should be a very happy family of four. However, the family has suffered two misfortunes, a rare "mucopolysaccharide" became the nightmare of the whole family. When the arrogant daughter was diagnosed more than two years old, the youngest born last year was diagnosed in June this year. In order to cure the children, Li Yanjun had spent all his savings and debt, and the only hope was the bone marrow transplant. However, the high medical fee made the father, who had been tortured by life, frowned and frowned. He hoped that the good people of the society helped him and helped his poor children. Recently, the reporter arrived in the Changqing district for an interview.
two children's bones have a clear deformation of
Li Yanjun's home is a flat out of the East Pan Village Square on the safe street, and his home is outmoded in the whole village compared to a row of large rows of houses around. There are only a few simple furniture, such as tables and chairs, stools, and so on. In addition to lighting bulbs, the only electrical appliance in the room is a 19 inch TV.
when the reporter came to his home, his eldest daughter Li Yixiao was sitting quietly in a chair. The height of about 90 centimeters was very unequal to her age of 9. Her thin body has many distinct skeletons. The little son, Li Rongze, was only one year and 02 months old, held by his mother. There was a prominent bone in the back of the child. It might be painful and was crying in his mother's arms. The child's father saw the reporter and hurried up to tell the reporters about their family's unfortunate experience.
doctor said, get this disease, generally can live to be more than ten years old, Li Yanjun day in the heart spent
Li Yanjun usually by going out to play odd jobs, usually follow the village construction contractor head to the site to work hard, when there is no living to go to the Changqing talent market there to find a live. When married, life is not rich, but it is also satisfactory.
in 2004, he had the first child, daughter Li Yixiao, who had found her daughter's bone deformed as a chicken breast and later diagnosed as "mucopolysaccharide" when she was more than two years old. This is a rare congenital genetic disease. The deficiency of the lysosome
hydrolase for the degradation of mucopolysaccharide (now called glycosaminoglycan) leads to a large amount of mucopolysaccharide accumulation in the tissue, resulting in skeletal development, liver and splenomegaly, and mental retardation. None of the cases had occurred in the whole province, and there was no specific treatment. He had brought his children to a number of hospitals, but had no effect, and his savings had been spent and heavily indebted. "Every night, my daughter is so sleeky that she can't sleep. I can only sleep on the painkiller and I give her a massage. But analgesics have side effects, which is not a way. " Li Yanjun said. At the age of 9, it is the age of schooling, but the daughter is suffering from the pain and pain. Li Yanjun can feel the pain in her heart. The doctor said that the child with this disease can live to the teenage years under normal circumstances. He spends all his life in his heart.
Li Yanjun said, "sincerely beg good hearted people to save two children
in June 15, 2012, Li Yanjun ushered in his second children, and he hopes the child will bring him hope." However, in June this year, unfortunately again, the boy in Ji'nan children's hospital was confirmed to be "mucopolysaccharide disease", the doctor suggested to the Navy General Hospital in Beijing for treatment. Li Yanjun, who had long been unable to make ends meet, took the children to Beijing with the help of his neighbors. Doctors at Navy General Hospital in Beijing told him that the disease is currently not available in the country, and that only expensive drugs abroad are not affordable for him. Mucopolysaccharide disease can be treated by bone marrow transplantation, but the cost of surgery alone is 600 thousand yuan.
hear this news, Li Yanjun and his son went to the hospital to do the bone marrow matching, the doctor told him that the matching results need more than a dozen days, he returned to Ji'nan with a glimmer of hope. He told reporters: "after knowing my family's difficulties, the director of the District Civil Affairs Bureau made a special trip to my home to give me 5000 yuan, and the women's Federation and the village also subsidized me. But because I was the only source of income in the family, I had been working for a period of time in order to cure the children, and the life of the family had become a difficult problem. The real life of the family has become a difficult problem. My heart beg everyone to save my two children. " Speaking, Li Yanjun has been sobbing. Here, this newspaper appeals to more social good people to lend a helping hand. Contact phone 13011739794.